Recruitment Update
EPLED is actively recruiting people living with dementia to join its Advisory Group.
Recruitment is closed for caregivers/care partners at this time. If you are a caregiver or care partner and would like to be added to our waiting list for future opportunities, please email Emma at emma.lanza@ladydavis.ca and Ellen at ellen.snowball@uhn.ca.
The EPLED program actively encourages and welcomes French speaking members to participate. EPLED staff will do what they can within their capacity to support French speaking members. However, please note that the Advisory Group operates in English only.
Engagement of People with Lived Experience of Dementia is a new Canadian Consortium on Neurodegeneration in Aging (CCNA) program.
We aim to engage persons with dementia and care partners in CCNA research -not as study subjects, but as collaborators in planning, conducting and communicating CCNA research. In doing so, we believe it will make our research better and more relevant.
Your Role
As a member of the Advisory Group, you will participate in one annual in-person meeting (in Canada) and three video-/tele-conferences during the remainder of the year. You will be compensated for travel expenses and offered a small honorarium for your participation. You will receive training for the role, including a general orientation to health research and the CCNA.
During meeting, you may hear from CCNA researchers and have an opportunity to ask questions and offer your feedback and insights, such as by:
Providing input on research questions and study design
Reviewing study documents
Interpreting data and giving context to results
Assisting with knowledge translation