Under Construction
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Under Construction 〰️
Resources
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CCNA Grant Writing Resources
General guidelines for planning lived experience engagement
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Alzheimer’s Disease International Conference (AAIC) 2024
Jennifer Bethell, Karen Myers Barnett, Myrna Norman, Ellen Snowball, Emma Lanza, Katherine S. McGilton
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Engaging people with lived experience of dementia in research meetings and events: insights from multiple perspectives
This article describes the experiences of engaging people with lived experience of dementia in research meetings and events
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Tips and Strategies for Engaging People with Lived Experience of Dementia in Research Meetings
An infographic with tips and strategies for engaging people with lived experience at research meetings and events
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A participatory evaluation for a patient engagement program within a national research network
Notification of funding: Pride in Patient Engagement in Research (PiPER) 2024 Grant Competition, Jennifer Bethell, Faye Forbes, Linda Grossman, Inbal Itzhak, Rosette Laughlin, Karen Myers Barnett, Ellen Snowball
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“Yes, It’s Possible!”: Engaging People with Lived Experience in National Meetings
CCNA Talking Brains Webinar - featuring Myrna Norman, Tony Leamon, Inbal Itzhak and Dylan Guan
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EPLED Video: Successful Integration of Lived Experience Perspectives in National Dementia Research Meetings
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EPLED Reference List
We welcome suggestions for additions to our resource list. Please email Ellen Snowball - ellen.snowball@uhn.ca
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EPLED Advisory Group Role Profile
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EPLED Terms of Reference
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EPLED Recruitment Poster
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Unité de soutien SSA Québec
Unité de soutien SSA Québec has launched a new capacity-building platform featuring training courses on patient engagement and patient partnership in research. Synchronous and asynchronous courses are offered in French and English.
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Readiness to Engage Work Book
The George & Fay Yee Centre for Healthcare Innovation
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Social Connection is Essential in Long-Term Care Homes: Considerations During COVID-19 and Beyond
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Engagement of people with lived experience of dementia advisory group and cross-cutting program: reflections on the first year
The article describes the activities, challenges and mitigation strategies, lessons learned and reflections on the importance of engagement from the first year of the EPLED Advisory Group.
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Engaging People With Lived Experience of Dementia in Research: Perspectives From a Multi-disciplinary Research Network
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Suggestions for Researchers Presenting to the Engagement of People with Lived Experience of Dementia (EPLED) Advisory Group
An infographic detailing our recommendations for researchers who wish to present to the advisory group.
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CEPPP Infographic
CEPPP: Learning Together Evaluation Framework For Patient And Public Engagement In Research
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Alzheimer's Association International Conference Poster 2022
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Alzheimer's Disease International Conference Poster 2022
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CIHR 2022 Summer Program in Aging
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Social Connection in Long-Term Care Homes: A Scoping Review of Published Research on the Mental Health Impacts and Potential Strategies During COVID-19
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CCNA - EPLED (Engagement of People with Lived Experience of Dementia) Recalibration 2021
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CCNA Training & Capacity Building EPLED Resource Video
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Alzheimer's Association International Conference (AAIC) 2020
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Engaging People with Lived Experience in Research on Dementia 2020 Workshop
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Patient and Public Involvement in Identifying Dementia Research Priorities
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Patient engagement in research related to dementia: A scoping review